Bella Ella :)

[ellasmama2007]

my beautiful ella rose was born almost 21 months ago by c-section after a blissful, healthy pregnancy. i did not get to hold her (read:bf her) for 4.5 hours after she was born, so im guessing her poor gut flora never had a chance. i received 1 dose of antibiotics after the cord was cut in the DR and 2 doses of rhogam, once before and once after she was born (rhogam is given to moms who are negative bloodtype if their babies are/could be positive blood type).
i noticed her reflux immediately, as in the first day of her miraculous and pain-filled life. i could hear it coming up her throat, but the nurses told me it wasnt possible for her to have developed reflux so early. i bf her constantly, but she had a very weak latch and looked jaundiced so i caved and gave her formula via sns, 2 ounces per day the first week. the last time i gave it to her during that time frame, she projectile vomited it onto the floor.
i took that as a sign to remove all dairy and soy from my diet and continued ebf her. her horrible sleep and colic continued and worsened while i kept removing things that i thought might be triggers. the blood specks in her poop showed up around 2 months and stayed until roughly 4 months. her poops were daily, soft and bright yellow. she was still gaining weight, but had to be held and walked by me all the time. we barely slept, despite cosleeping.
i made bad choices regarding her care, which i would sacrifice limbs if i could to take them back. i allowed her to be vaccinated until 6 months and i introduced solids at 6 months, after literally fighting with my family, dh and ella's ped GI(s), ped allergist and pediatrician (s). things got obviously worse, but even when i pulled the solids and went back to ebf, the damage had been done. she alternated between constipation and loose, clumpy poops. i even tried giving her elemental formulas and drinking them myself, in hopes of calming her torturous nights filled with constant waking and hysterical crying (sometimes i think she's having night terrors also, definately bad dreams, sometimes leg pain, sometimes reflux). i tried neocate, elecare, alimentum, progestamil and eo28 splash - grape.
in december, we treated yeast with fluconazole and it was hell. she woke all the time, sitting up in her sleep with the reflux and was so irritable. we both started low dose naltrexone 4 months ago to try to offset the immune response to allergens. we have also both tried gastrocrom.
i had never noticed any food allergies or intols in myself until after ella's birth. i now have ana allergies to some detergents, hemp seeds, pecans and whatever publix uses on their fruits and veggies. my first reaction was to detergent 5 weeks after ella was born and my face and throat swelled so horribly i was unrecognizable. since that time, i have noticed intolerances to more and more foods with symptoms of bloating, discomfort, loose stools, acute depression and anger and itchy/stinging throat and mouth.
last october-january, my eosinophil count sored to 5221 (normal range 40-400) and this resolved on its own possibly after i removed cod liver oil from my daily supp regimine at the suggestion of my angel from heaven, Hilary :) . we were never really positive what caused that, but removing the clo seemed to do the trick. lately too i have reacted to b12 injections with severe migraines, depression and anger issues. a brilliant mama provided me with links discussing the connection between negative reactions to synthetic b12 and metal toxicity (some metals like mercury bind with the methyl groups from b12 and create more toxic, more mobile metals).
recently, ella's urine organic acids testing came back pretty rotten, with 2 markers for celiac, 5 for yeast and multiple for clostridia and vit/min defs.
ill include the results in the next post. we also have our urine porphyrins test back, which my ped said was unreliable because her urine was too dilute.
we got back some labwork from ella on thursday which had me so terrified i literally thought my heart would stop all of thursday and friday until my ped's nurse finally called me back to reassure me that everything was basically alright. her cbc showed low neutrophils (1299, with normal 1500 +), low lymphocytes (70 pts below normal) and high rdw (2.5 above normal). i read that these indicate one of 2 things, b12 def which i know is present or leukemia. ella has 2 enlarged lymph nodes on the back of her neck which have been there for so many months im not even sure. they are non-tender, non-red, non-hot and easily moveable, so my ped is not worried about them. but this labwork with everything else had me so scared. the nurse called back and said that these values were basically normal and not to be concerned and to have a nice weekend. i feel like im in the twilight zone because everywhere else says that those values are NOT normal.
her cmp also showed low blood creatinine (.2, normal is .3+) so no wonder i couldnt get a concentrated urine for all these months for her urine porphyrins test. he said that was fine, but i told the nurse we are not doing the urine challenge for metals and i dont feel comfortable treating for yeast either right now. her bun/creatinine ratio was also high.
we've done gut healing measures as much as possible, but there is a lot that ella doesnt tolerate or i dont ( like clo, bone broths, liver, coconut oil, many many nutrient-dense foods). i have tons of supps and have just stopped taking a lot of them in the past two weeks since the b12 reactions. right now i am taking sodium ascorbate, coq10, biotin, molybdenum, vit d, gelatin, nac and l-glutathione. we both take epsoms baths nightly. i drink a bunch of water kefir, i have roughly a tsp of raw honey and eat fermented fennel daily. i sometimes have a glass of organic, sulfite free, vegan red wine with dinner.
i basically eat broc, caulif, sweet pots, pumpkin seeds, walnuts, evoo, sea salt and bananas daily. i randomly rotate in grassfed chicken, beef and eggs, wild salmon and tilapia, avocados, red bell peppers and asparagus.
ella is currently eating puffed brown rice and homemade rice milk (rice and water), bananas, grassfed beef, wild salmon and squash.
many times we have, i believe, lost all safe foods. things will settle for small periods of time and then spiral out of control. when that happens, she sleeps for a few hours here and there, divided by hours of thrashing around in my arms or hyperactivity. she always wakes screaming. her poops are undigested, soft and not brown. lately though, i think digestive enzymes are helping her poop a bit.
she is happy a lot and she is brilliant! she can almost count to 20, she can say the alphabet and recognizes numbers 1-10, some letters and some words. she speaks in sentences most of the time. she is social and loving, with great eye contact and interaction. she is like my little shattered heart walking around outside of my body.
i dont even know what im asking of you, just anything you can think of i guess. i thank you all and will always remember your kindness to me during this time.

[Momtezuma Tuatara]

I don't really know what to say.

I know for myself, when I've got to the end of the system, I've walked away from it. There comes a point where they have nothing to offer you but more drugs and more confusion, and it all just gets too much for me. So I get on with what I can do, and forget what I can't do.

I'd rather just do that, leave the rest to God, and try to enjoy every day.

Which is basically, where I'm at now.

So I think that would be the approach I'd take in your situation, because the worry and everything else that goes along with it, is as much a trasher as the problems.

:bighug:

[magical1]

Oh my goodness that nearly got me tears going.

I had a really really sick baby from birth who is now a strapping 12 year old with bigger feet than me!! Not strong as an ox but very close.

He was a ceaser birth, formula fed (from quite early) fully vaccinated (with reactions showing as blood loss in his nappies).

He used to SCREAM! day and night for the first two years of his life..he came out SCREAMING! He used to be fast asleep and then suddenly you would hear him SCREAMING like a woman with his eyes wide open like he had seen the devil. It drove me to drink!

I was always told... His behaviour is in the rhelms of "normality" so I just endured it all and let him do the same. Until he turned five and then he started having almighty reactions to food... which the hospital would always say must have be his kidneys as it was lower flank pain. SO they operated on his left kidney despite me asking constantly are you sure it's not food? Naturally this did nothing to improve his issues.

I was in a specialists office one day and I had an epipheny (sp). My eyes suddenly went wham I'm open and from that day I took him away from the allopathic route..no more Doctors, no more tests, no more!

Luckily for me this co incided with a natural healer turning up in my life who helped me turn everything around.. not only for Ollie but also for the rest of the family. Yes it was the food. they should always listen to Mums eh!

So... my story is here to illustrate that there is light at the end of the tunnel. I NEVER thought I would have a "normal, well" child. He went from throwing up every day of his life to thriving.

I would be really happy to pass you onto my healer who is Canadian and helps all my friends with various health issues including cancer. He won't charge you anything. He is happy to share his knowledge with people who want to help heal themselves.

Have a think about it and you can PM me anytime.

[3monkeys]

I feel bad if I read that and then dont post. I have nothing to offer in terms of advice, but I just wanted to offer you hugs............... I just can't imagine what you are going through.... :(

[ZGT Mummy]

I also have nothing helpful to contribute except that I also could not read it and say nothing.

I can sort of understand from the allergy point of view as I have environmental allergies and my DS2 has severe food and environmental allergies so I do understand how hard that side of things can be. Although for us it is limited to just the severe allergies - no intolerances that we're aware of - and we have a handle on them so it does make home life easier. Our only problem is socialising.

I can not begin to say how sorry I am that you, and especially her, have to live like this. It must be heartbreaking to see the pain she goes through.

The only thing I would have to offer is that I too would walk away from the "system" and look into something else as allopathic medicine is obviously not working for your little Ella.

I honestly hope you both get some relief soon.

:bighug:

[ellasmama2007]

magical1, i will pm you :)

part of what makes our circumstances so frustrating is that we have embraced alternative medicine and are seemingly getting worse and worse. i am no fan of allopathic medicine, especially now, but we just cant seem to find that one practitioner who can really help us. my pediatrician is a holistic doctor who prescribes meds, but also looks to nutritional and probiotic support. my nd specializes in homeopathy and also does chinese herbs and acupuncture. i have a lovely homeopath with whom i have flower essences consults. my newest doctor is an alternative doctor who also focuses on nutrition as well as meditation and affirmations. i have been to a chiropractor for CST once, but was so dizzy and sick for 2 days after my adjustment that i wasnt sure if she did something really powerful or really wrong and i havent been back.
i have totally abandoned mainstream docs, but we are in a really scary place right now. i cant feed my daughter. we get one food for a little while and she stops losing and looks a little better and then becomes sensitized to it. then she just loses and loses until her little ribs and spine start sticking out. her labs are messed up and i live everyday wondering if i will get to watch her grow up. magical1, stories like yours are what i cling to for hope.

[cartersmom]

Oh my!! I also have nothing constructive to offer but my heart goes out to you and your babe. I pray you find some answers and some relief soon. :bighug::hug::kiss:

[ellasmama2007]

i figured i would include some labwork for anyone who is interested or understands any of this. it is a TON of info, so feel free to ignore it if it makes your eyes cross! other moms have mentioned to me that there are similarities between these results and the results of their children who have mitochondrial disorders. i am really not very familiar with mito issues at all.
here is her urine organic acid test results

organic acids test - it gives the normal range and hers is next
citramalic 0.0 - 2 .0 2.28 H
5-hydroxymethyl-2-furoic 0.0 - 80 .0 157.03 H
3-oxoglutaric 0.0 - 0 .5 2.97 H
furan-2,5-dicarboxylic 0.0 - 50 .0 64.44 H
furancarbonylglycine 0.0 - 60 .0 0.25
tartaric 0.0 - 16 .0 1.34
arabinose 0.0 - 47 .0 69.22 H
carboxycitric 0.0 - 46 .0 0.85

Bacterial
2-hydroxyphenylacetic 0.0 - 10 .0 0.65
4-hydroxyphenylacetic 0.0 - 50 .0 69.20 H
HPHPA 0.0 - 150 .0 603.43 H
VMA analog 0.0 - 31 .0 5.45

Oxalate Related
glyceric 0.0 - 10 .0 5.86
glycolic 0.0 - 100 .0 15.07
oxalic 0.0 - 37 .0 109.29 H

Glycolysis
lactic 0.0 - 100 .0 63.41
pyruvic 0.0 - 50 .0 53.44 H
2-hydroxybutyric 0.0 - 2 .0 1.51

Krebs Cycle
succinic 0.0 - 20 .0 88.83 H
fumaric 0.0 - 10 .0 37.27 H
2-oxo-glutaric 15.0 - 200 .0 180.96
aconitic 0.0 - 25 .0 80.94 H
citric 180.0 - 560 .0 2165.29 H

Neurotransmitters
HVA 0.0 - 28 .6 10.98
VMA 0.0 - 12 .7 9.96
5-hydroxyindoleacetic 0.0 - 20 .0 0.47

Pyrimidines
uracil 0.0 - 22 .0 7.02
thymine 0.0 - 2 .0 0.64
3-hydroxybutyric 0.0 - 10 .0 83.28 H
acetoacetic 0.0 - 10 .0 70.41 H
ethylmalonic 0.0 - 10 .0 9.96
methylsuccinic 0.0 - 5 .0 4.97
adipic 0.0 - 12 .0 22.45 H
suberic 0.0 - 2 .0 5.84 H
sebacic 0.0 - 2 .0 0.65

Toxic Indicators
pyroglutamic 20.0 - 115 .0 34.56
orotic 0.0 - 3 .5 0.91
hydroxyhippuric 0.0 - 20 .0 0.76

Vitamin Indicators
methylmalonic 0.0 - 5 .0 6.52 H
ascorbic 10.0 - 200 .0 4.60 L
kynurenic 0.0 - 2 .0 0.56
methylcitric 0.0 - 12 .0 0.37
pyridoxic 2.0 - 26 .0 3.08
pantothenic 1.0 - 4 .0 8.08 H

Amino Acid Metabolites
2-hydroxyisovaleric 0.0 - 2 .0 1.09
2-oxoisovaleric 0.0 - 2 .0 0.52
3-methyl-2-oxovaleric 0.0 - 2 .0 1.52
hydroxyisocaproic 0.0 - 2 .0 0.72
2-oxoisocaproic 0.0 - 2 .0 1.11
2-oxo-4-methiolbutyric 0.0 - 2 .0 0.75
mandelic 0.0 - 5 .0 0.00
phenyllactic 0.0 - 2 .0 1.66
phenylpyruvic 0.0 - 5 .0 1.88
homogentisic 0.0 - 2 .0 1.69
4-hydroxyphenyllactic 0.0 - 50 .0 8.41
3-indoleacetic 0.0 - 10 .0 2.15

Miscellaneous
glutaric 0.0 - 2 .0 6.00 H
N-acetyl aspartic 0.0 - 100 .0 3.18
3-hydroxy-3-methylglutaric 0.0 - 36 .0 42.28 H
malonic 0.0 - 10 .0 2.46
methylglutaric 0.0 - 10 .0 1.56
hippuric 10.0 - 400 .0 2381.13 H
4-hydroxybutyric 0.0 - 5 .0 1.52
phenylcarboxylic 0.0 - 15 .0 0.18
indole-like compound 0.0 - 60 .0 8.26

Interpretation

Elevated yeast/fungal metabolites, indicating a yeast/fungal overgrowth of the gastrointestinal tract. Prescription or natural
(botanical) anti-fungals, along with supplementation of high potency multi-strain probiotics (20-50 billion cfu’s), may reduce
yeast/fungal levels. *

Increased 4-hydroxyphenylacetic acid, a tyrosine product of GI bacteria, is associated with bacterial overgrowth and small
bowel disease (Chalmers et al, Clin Chem 25:1791,1979). Elevated values may be associated with celiac disease. Suggest
supplementation with 20-30 billion cells per day of probiotics and evaluation for celiac disease.*

Increase in HPHPA [3-(3-hydroxyphenyl) 3-hydroxypropionic acid], an abnormal tyrosine metabolite produced by gastrointestinal
bacteria of Clostridia species, including C. difficile (organisms that cause diarrhea). This compound may have behavioral and/or
neurological effects. In most cases, Clostridia overgrowth can be controlled by supplementation, with 30 billion cells per day of
Lactobacillus rhamnosus GG (Culturelle) and/or 2-6 billion cfu’s of Saccharomyces boulardii. *

Elevated succinic acid may indicate a relative deficiency of riboflavin and/or coenzyme Q10 that are needed to supply cofactors for
succinic dehydrogenase in the Krebs cycle. Suggest supplementation with a minimum of 20mg riboflavin (which could be provided
through a high quality multivitamin) and/or 50mg per day of coenzyme Q10.

Elevated fumaric acid may be due to impaired Krebs cycle function or a defect of the enzyme fumarase.

Increased citric and aconitic acids. High citric and aconitic acids may be due to increased intake of citric acid-containing foods, or
as a result of intestinal yeast that either produce citric acid or perhaps inhibit the human citric acid cycle. Increased citric acid may
also indicate depletion of glutathione, which is required for the enzyme aconitase to metabolizes both aconitic and citric acids. If
pyroglutamic acid is also low, consider supplements of glutathione, n-acetylcysteine, or lipoic acid.

Low ascorbic acid (Vitamin C), indicating a dietary deficiency and/or increased utilization of antioxidants. Suggest supplementation
with 1000mg per day of buffered Vitamin C, divided into 2-3 doses. *

Pantothenic acid is one of the essential B vitamins. High pantothenic acid indicates high recent intake of pantothenic acid. Since
some individuals may require very high doses of pantothenic acid, high values do not necessarily indicate the need to reduce
pantothenic acid intake.

Increased acetoacetic and/or 3-hydroxybutyric acids. These ketones indicate increased metabolic utilization of fatty acids
associated with diabetes mellitus, fasting, dieting (ketogenic or SCD diet), or illness such as nausea or flu, among many other causes.
Increases in ethylmalonic, methylsuccinic, adipic, suberic, or sebacic acids may be due to fatty acid oxidation disorders, carnitine
deficiency, fasting, or to increased intake of the medium chain triglycerides found in coconut oil, MCT oil, and some infant formulas.

The fatty acid oxidation defects are associated with hypoglycemia, apnea episodes, lethargy, and coma. [The acyl carnitine profile
(Duke University Biochemical Genetics Laboratory 919-549-0445) can rule out fatty acid oxidation defects.] Regardless of cause,
supplementation with L-carnitine (500-1000mg per day) may be beneficial. *

Increased glutaric acid. This compound may be elevated in about 10% of children with autism. Causes can include glutaric
acidemias, fatty acid oxidation defects, riboflavin deficiency, ingestion of medium chain triglycerides, metabolic effects of valproic
acid (Depakene), and celiac disease. Glutaric academia type II, also called acyl-CoA dehydrogenase deficiency, caused by a defect
in one of the electron transport proteins, is associated with dysmorphic features, seizures, hypoglycemia, and developmental delay.

The probability of genetic disease is higher when values exceed 25mmol/mol creatinine. Regardless of the cause, supplementation of
riboflavin (20-50mg) and coenzyme Q10 (50mg per day) may be helpful. *

High oxalic acid and/or its conjugate base form oxalate may be found in the genetic hyperoxalurias, in autism, in women with vulvar
pain, in fibromyalgia, and may also be due to vitamin C overuse. However, kidney stones were not correlated with vitamin C intake in a
very large study. It is also a byproduct of molds such as Aspergillus and Penicillium and probably Candida. If yeast or fungal markers
are elevated, antifungal therapy may reduce excess oxalates. High oxalates may cause anemia that is difficult to treat, skin ulcers,
muscles pains, and heart abnormalities. Elevated oxalic acid is also found in anti-freeze (ethylene glycol) poisoning.

Oxalate values greater than 90 mmol/mol creatinine may be associated with concomitant increases in glyceric acid (values greater than
150 mmol/mol creatinine in hyperoxaluria type II) or glycolic acid (values greater than 100 mmoml/mol creatinine in hyperoxaluria
type I). Normal values of these other metabolites rule out these genetic causes of elevated oxalates.

Regardless of its source, high oxalic acid may cause kidney stones and may also reduce ionized calcium. Oxalic acid absorption from
the gastrointestinal tract may be reduced by supplementation with calcium citrate before meals. Vitamin B-6, arginine, vitamin E,
chondroitin sulfate, taurine, selenium, omega-3 fatty acids and N-acetyl glucosamine supplements may also be useful to reduce oxalates
and/or their toxicity. Excessive fats in the diet may cause elevated oxalate if the fatty acids are poorly absorbed because of bile salt
deficiency. Nonabsorbed free fatty acids bind calcium to form insoluble soaps, reducing calcium's ability to bind oxalate and increase
its absorption. If taurine is low in plasma amino acid profile, supplementation with taurine may help stimulate bile salt production
(taurocholic acid), leading to better fatty acid absorption and diminished oxalate absorption.

Bone tends to be the major repository of excess oxalate in patients with primary hyperoxaluria. Bone oxalate levels are negligible in
healthy subjects. Oxalate deposition in the skeleton tends to increase bone resorption and decrease osteoblast activity.

Oxalates may also be deposited in the kidneys, joints, eyes, muscles, blood vessels, brain, and heart and may contribute to muscle
pain in fibromyalgia. Oxalate crystal formation in the eyes may be a source of severe eye pain in individuals with autism who may
have eye-poking behaviors. High oxalates in the gastrointestinal tract also may significantly reduce absorption of essential metals
such as calcium, magnesium, zinc, and others.

A low oxalate diet may also be useful in the reduction of body oxalates even when dysbiosis is the major source of oxalates. Foods
especially high in oxalates include spinach, beets, chocolate, peanuts, wheat bran, tea, cashews, pecans, almonds, berries, and many
others. A complete list of high oxalate foods is available on the Internet at http://www.greatplainslaboratory.com/eng/oxalates.asp.

Please Note: A new oxalate range based on the mean ± 2 standard deviations of normal individuals began August 22 ,2006. The
previous range was based on cutoff values for the diagnosis of genetic forms of hyperoxalurias. No change in the method
(GC/MS) has occurred.

Elevated hippuric acid. Hippuric acid is a conjugate of glycine and benzoic acid formed in the liver. Benzoic acid is derived from
byproducts of gastrointestinal bacteria and from the chemical solvent toluene. High values are most often due to dysbiosis
(abnormal microbial overgrowth). Benzoic acid is also a food preservative and present in high amounts in cranberry juice. The
workplace is the most common source of toluene exposure, but toluene may be absorbed from outgassing of new carpets and other
building materials or absorbed during recreational abuse of solvents such as glue-sniffing. Bacterial overgrowth can be treated with
natural anti-bacterial agents and/or 30-50 billion cfu’s of probiotics that include Lactobacillus rhamnosus. *

3-Hydroxy-3-methylglutaric acid is elevated in the genetic disease 3-hydroxy 3-methylglutaric aciduria. Typical values observed in
the genetic disease are 200-11,000mmol/mol creatinine. The cause of less significant increases in this compound is unknown.
Because yeast also produce this compound and yeast metabolites are frequently elevated with this compound, slight increases may be
yeast related.

Increased pyruvic acid. Pyruvic acid may be increased to this concentration by a number of nonspecific factors such as vigorous
exercise, bacterial overgrowth of the gastrointestinal tract, shock, poor perfusion, anemia and many other causes.

Methylmalonic acid is elevated in Vitamin B-12 deficiency, in defective absorption or transport of Vitamin B-12, and in the genetic
disease methylmalonic acidemia. Values greater than 100mmol/mol creatinine are more consistent with the genetic disease, while
lower values are more commonly associated with nutritional deficiencies. Supplementation with Vitamin B-12 may be beneficial.*

[ellasmama2007]

here are her cmp, cbc with diff, blood lead value and vit d level. her value is given first with the normal ranges following.

COMPREHENSIVE METABOLIC
PANEL W/EGFR TP
GLUCOSE 85 65-99 mg/dL
FASTING REFERENCE INTERVAL
UREA NITROGEN (BUN) 5 3-14 mg/dL
CREATININE 0.20 L 0.30-0.70 mg/dL
VERIFIED BY REPEAT ANALYSIS
PATIENT IS <18 YEARS OLD. UNABLE TO CALCULATE EGFR.
BUN/CREATININE RATIO 25 H 6-22 (calc)
SODIUM 138 135-146 mmol/L
POTASSIUM 4.7 3.8-5.1 mmol/L
CHLORIDE 106 98-110 mmol/L
CARBON DIOXIDE 21 21-33 mmol/L
CALCIUM 9.8 8.5-10.6 mg/dL
PROTEIN, TOTAL 6.8 6.3-8.2 g/dL
ALBUMIN 4.4 3.6-5.1 g/dL
GLOBULIN 2.4 2.0-3.8 g/dL (calc)
ALBUMIN/GLOBULIN RATIO 1.8 1.0-2.1 (calc)
BILIRUBIN, TOTAL 0.4 0.2-0.8 mg/dL
ALKALINE PHOSPHATASE 338 H 108-317 U/L
AST 33 3-69 U/L
ALT 20 5-30 U/L


CBC (INCLUDES DIFF/PLT) TP
WHITE BLOOD CELL COUNT 6.1 6.0-17.0 Thousand/uL
RED BLOOD CELL COUNT 4.76 3.90-5.50 Million/uL
HEMOGLOBIN 12.6 11.3-14.1 g/dL
HEMATOCRIT 38.1 31.0-41.0 %
MCV 80.1 70.0-86.0 fL
MCH 26.6 23.0-31.0 pg
MCHC 33.2 30.0-36.0 g/dL
RDW 17.4 H 11.0-15.0 %
PLATELET COUNT 201 140-400 Thousand/uL
ABSOLUTE NEUTROPHILS 1299 L 1500-8500 cells/uL
ABSOLUTE LYMPHOCYTES 3733 L 4000-10500 cells/uL
ABSOLUTE MONOCYTES 885 200-1000 cells/uL
ABSOLUTE EOSINOPHILS 159 15-700 cells/uL
ABSOLUTE BASOPHILS 24 0-250 cells/uL
NEUTROPHILS 21.3 %
LYMPHOCYTES 61.2 %
MONOCYTES 14.5 %
EOSINOPHILS 2.6 %
BASOPHILS 0.4 %

VITAMIN D, 25-OH, TOTAL 51 20-100 ng/mL

LEAD, BLOOD <3 mcg/dL

[Momtezuma Tuatara]

A heap of that in the first post is just gobbledegook to me, as we dont' have these tests here to my knowledge.

Can you reformat the interpretation, so that it reads okay? Even then, I think my eyes glaze over. The interpretations don't appear to be that to me. More ifs and buts IMO....

The second lot makes sense enough... and apart from the liver test (which could mean a number of things), most of the rest indicates the immune system is working hard at something.

If they medical profession did those tests, they should be able to tell you what they mean. Otherwise why do them?

[ellasmama2007]

A heap of that in the first post is just gobbledegook to me, as we dont' have these tests here to my knowledge.

Can you reformat the interpretation, so that it reads okay? Even then, I think my eyes glaze over. The interpretations don't appear to be that to me. More ifs and buts IMO....

The second lot makes sense enough... and apart from the liver test (which could mean a number of things), most of the rest indicates the immune system is working hard at something.

If they medical profession did those tests, they should be able to tell you what they mean. Otherwise why do them?

i tried to reformat a bit, but it's still pretty gross.
my holistic ped did the tests and his response to me was "she's really messed up." he elaborated a little.

[magical1]

Is it just me or are tests just put there to confuse the healing? Oh and to give you stomach ulcers. :giggle:

[TanyaL]

Hi, Ella's Mom, glad (sorta) to see you here. Obviously wishing you had answers and a plan already.

Have you gotten the stuff for your own urine porphyrin test? I really hope that starts to make things make sense. I mentioned it before, I really liked acupuncture for myself, to help boost healing along, and my kids were surprisingly okay with it, though it was a lot shorter time period for them than for me. If circumstances had been different, we would've done more of it.

I guess you need to wait for that... what does your doc say would be next, if either lead or mercury or both show up? Does that change how he's suggesting you proceed?

[Momtezuma Tuatara]

my holistic ped did the tests and his response to me was "she's really messed up." he elaborated a little.

How much is a little?

[ellasmama2007]

tanya, my urine porphyrins is still in the mail to paris. i had only just received the ok to ship it on friday so it will be a little while (2 weeks i'm guessing).
my ped still wants me to do the urine challenge for metals on her to be a little more certain whether she has them or not, but i'm not touching her bones with a ten foot pole now that i see her cbc. i am still not comfortable with those results and i'm not risking pulling minerals from her bones.
MT,my ped's impression of ella's urine organic acid test is that she has 5 markers for yeast overgrowth and clostridia (so significant dysbiosis), 2 markers for celiac, multiple things pointing to vitamin and mineral deficiencies, etc. basically, it was worse than he expected and he wants us to attack the yeast with a strong antifungal because he said that healing whatever is going on with yeast in addition is like fighting a battle with one arm tied behind your back. i have yet to agree to the antifungal since we've been there done that already and not only did it not help, she was miserable the whole time and i'm afraid that her labwork is too suggestive of issues to risk putting her liver through that.

[magical1]

What natural anti fungals have you used so far?

[ellasmama2007]

i havent found much that she tolerates in the way of natural antifungals. i tried kombucha to no avail but she does tolerate bottled s.boulardii. i also give her tons of bottled probiotics, but she doesnt tolerate kefirs or fermented veggies. my hands are tied with the diet because bananas are one of her potentially 2 safe foods right now. ive tried candida enzymes, but i cant tell if she's having die off or reacting to them.

[Momtezuma Tuatara]

Kombucha isn't an antifungal. In fact, is the best fungal feeder I know.

[magical1]

Didn't they find people in the States with big ole mushrooms living in them after using Kombucha!

[magical1]

Have you tried Threelac? http://www.return2health.net/

Bananas are so high in sugar. Pity that this is one of the only things she can tolerate you are just end up feeding the fungus.

[ellasmama2007]

ha, i never heard that about mushrooms growing in kombucha drinkers. i thought the s. boulardii in the kombucha was a beneficial yeast that prevented hostile candida from growing.
i know i shouldnt let her have the bananas, but we just can NOT lose that food. it's almost impossible to maintain her weight as it is, let alone try to get her to gain.